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1.20 Community Involvement in Outreach Activities and Community Based Participatory Research (CBPR)

1.0 Purpose

The purpose of this policy and procedure is to describe the Organization’s involvement of the community in the research process, as well as the community outreach activities in order to enhance the public’s understanding of research, obtain feedback about any community concernsconcerns, disseminate results of research conducted by the Organization and respondencourage toinvolvement questionsof fromthe prospectivecommunity subjectsin about specificthe research protocols available within the Organization.process.

2.0 Policy

  • 2.1.

    It is the policy of the Organization thatthat:

    research
    • 2.1. Outreach activities will be conductedundertaken whichthrough willa advance knowledge for the benefitvariety of the local community, the State of Nebraska, the United Statesmechanisms and countries abroad from which patients come for treatment and students come to enhance their education.
    • 2.2. The Organization is committed to involving the communities the Organization serves, as well as the members of those communities, in the research process, including the design and implementation of studies, analysis of data and the dissemination of results.
    • 2.3. The Organization is committed to designing and initiating outreach activitiesvenues to enhance the understanding of research by both the communities the Organization serves, as well as the membermembers of those communities.

    3.0
  • 2.2. Procedures

    • Outreach
    • 3.1.activities Involvementwill inbe Researchundertaken Design,to Implementationmake the community aware of current and Analysisproposed research activities of Researchthe ResultsOrganization,
        and to provide advice about the needs of the community.
      • 2.3.1.1. TheAs appropriate considering the nature of the research, the Organization supportswill mechanisms that promoteinvolve the involvement of members of communities the Organization serves, as well as the members of those communities, in the research process,process; including the design and implementation of research,studies, whenanalysis appropriate,of data, and analysisthe dissemination of results.

      3.1.2. The Organization utilizes a variety of different outreach activities to educate the community about science, ongoing research, research needs and involvement of the community in opportunities to provide advice regarding the design and implementation of research.

  • 3.2.0. Outreach Activities for Education of the Community
    • 3.1 The Organization utilizes the following established outreach activities for educational purposes, as well as the dissemination of research results:
    • 3.3.2. Additional outreach activities specific to UNMC/Nebraska Medicine utilizesand theBMC followingmay educational outreach activities:include:

      • 3.3.1. IRB Brochure: A brochure titled “Participating in Clinical Trials” is distributed. The brochure gives a basic description of clinical trials and human subject rights. The brochure also directs the reader to the IRB website, which contains information about human subject research and links to relevant websites.

      • 3.3.2.1. UNMC Clinical Trials Database:The UNMC Center for Clinical and Translational Research maintains a clinical trial database where the public can find information about available clinical trials by medical area.

      • 3.3.3. Research Subject Advocate Office

        Office:

        The Research Subject Advocate (RSA) Officeoffice was created in part to provide community education about processes in place to safeguard research subject safety within clinical and translational research trials and programs. The RSA Officeoffice gives presentations to community groups interested in learning more about research or who have concerns or questions about research subject safety. The RSA Officeoffice maintains a record of all RSA community outreach activities.

      • 3.2.2.

        3.3.4."Nebraska "TheMedicine Week”Now”: The Marketing Department for the Nebraska MedicalMedicine CenterMedia Relations publishes “TheNebraska Week”Medicine Now” on a weeklydaily basis which is available to the public by distribution in hard copy in public areas.

        electronically.
      • 3.2.3.

        3.3.5. “Ask UNMC” on KETV Channel 7

        and the UNMC YouTube page.
      • 3.2.4.

        3.3.6.“Connect” “magazine: UNMC Discover”:Strategic The Department of Public AffairsCommunications publishes semi-annually“Connect” “UNMCmagazine Discover”, focusing on research at UNMC, which is available to the public either by cumulative mailing lists or by distribution to public libraries throughout the state of Nebraska.

      • 3.3.7. “UNMC Connect”: The Department of Public Affairs publishes semi-annually “UNMC Connect”,annually, which is available to the UNMC campus and UNMC alumni eitherboth online and by cumulative mailing lists or byphysical distribution.

      • 3.2.5.

        3.3.8. Community outreach groups: The Organization has a number ofseveral outreach groups which provide the public with the opportunity to convey special needs of the community in terms of medical care and other services, which can translate into research.

    • 3.4.3. CHMCOutreach utilizesactivities the following educational outreach activities:
      • 3.4.1. IRB Brochure: A brochure titled “Participating in Clinical Trials” is providedspecific to CHMC formay distribution.include: The
        • 3.3.1. brochure gives a basic description of clinical trials and human subject rights. The brochure also directs the reader to the IRB website, which contains information about human subject research and links to relevant websites.
        • 3.4.2. “The Hero”Link”: The Marketing Departmentdepartment at CHMC publishes “The Hero”Link” ontwice aper weekly basis, which is availableyear to the employees of CHMCinternal and thecommunity public in hard copy via distribution to public areas.providers.
        • 3.4.3.2. “Just Kids”: The Marketing Departmentdepartment at CHMC mailsdistributes “Just KIDS” ontwice per year to a quarterlycatered basisaudience.
        • 3.3.3. “The Pulse”: The Marketing department at CHMC distributes “The Pulse” weekly to targetedinternal zipand codescommunity providers.
        • 3.3.4. “The Connection”: The Marketing department at CHMC distributes “The Connection” twice per year to internal and community providers.
        • 3.3.5. “Visions”: The Marketing department at CHMC distributes “Visions” twice per year in print to Children’s Foundation donors.

      4.0. Outreach activities specifically directed at community education regarding current and proposed research studies.

      5.0. Outreach activities directed at involvement of the community in Research Design, Implementation, and Analysis of Research Results (CBPR).

      • 5.1. The Great Plains IDeA-CTR (GP IDeA-CTR) offers community engagement and outreach resources to ensure that research done by the Organization is relevant and filling the needs in rural and underserved areas served by the Organization and partner institutions. https://gpctr.unmc.edu/cores/community-engagement-outreach/

        Activities conducted or supported by the GP IDeA-CTR include:

        • 5.1.1. Seminars and workshops in partnership with the Professional Development Core and Community Engagement and Outreach Core to provide the tools and training for CTR investigators to improve community engagement practices and to help researchers and community partners understand and prioritize community concerns that might be addressed with CTR projects.
        • 5.1.2. Promotion and expansion of regional Practice-Based Research Networks (PBRNs) that work to merge clinical practice with evidence-based research https://gpctr.unmc.edu/ctr-resources/pbrn/
        • 5.1.3. Community-Academic Partnership (CAP) Program has the goal to provide funding and other supports for research proposals with a strong community focus to improve health and wellness in communities through the development or testing of programs and interventions that are impactful and sustainable in a community setting https://gpctr.unmc.edu/cores/community-engagement-outreach/cap-program/
        • 5.1.4. GP IDeA CTR Community Advisory Board (CAB) includes representatives from across the state. The goals of the CAB include the identification and prioritization of health concerns in the Omaharegion, metropolitancontributing area.to the review process for proposed pilot and scholar applications, and helping distribute research findings to the communities.
        • 5.1.5. The Health Priorities List, created and maintained by the Community Advisory Board, assists the GP IDeA CTR in making funding decisions for Pilots and Scholars.
        • 5.1.6. Community-Engaged Research Interest Group (CEnRIG) serves to address the challenges and opportunities community-engaged researchers and community partners face https://gpctr.unmc.edu/cores/community-engagement-outreach/cenrig/
        • 5.1.7. Community Engagement and Outreach Consultations are available through the Community Engagement and Outreach (CEO) Core, consisting of experienced community-engaged researchers and community partners who have successfully secured funding from federal agencies (including NIH & PCORI) with clinical and translational science expertise.
      • 3.

        5.2. The UNMC College of Public Health Center for Reducing Health Disparities (CRHD) supports faculty and community researchers in community engagement including CBPR

        • 5.2.1. The CRHD conducts and publishes research (e.g., African American Listening Sessions, Hispanic and Latinx Community Listening Sessions, colon cancer, cattle feed lots), Health Needs Assessments (e.g., refugee and migrant communities) , and social justice activities. They also train faculty and students on community engagement and serve the various communities throughout the state to assist with identifying and prioritizing their health needs and goals.
        • 5.2.2. The College teaches graduate level courses on the foundations and application of the CBPR approach.

      6.0. Evaluation of Outreach Activities

      • 6.1. The UNMC Office of Community Engagement and The College of Public Health conduct a biennial Community Engagement Survey among faculty and staff of UNMC to provide insights regarding involvement in community organizations and activities, outreach and community service, community engaged education, and Community Based Participatory Research. The engagement survey is conducted by the OCE and is constructed via the Community Collaboration Council, which includes representation from all colleges, institutes, and other engaged departments.
      • 6.2. The ORA, in conjunction with the IO, the Executive Chair of the IRB, the RSA and UNMC PublicStrategic Affairs,Communications, and CHMC Marketing, performs an ongoing evaluation of community outreach activities in order to identify the needs of the community and any concerns.

      DOCUMENT HISTORY:

       Written: 4/14/2016 (Approved: 4/14/2016) - original author not recorded

       Revied: 2/12/2018 - revision not documented

       Revised: 6/2/2023 – amended numbering of section 3.2, made formatting and syntax corrections, updated sections 3.2, 3.3, and 3.4 to reflect current materials.{Approved Rusty McCulloh (Institutional Official), Bruce Gordon (Assistant Vice Chancellor for Regulatory Affairs, Executive Chair)}

       Revised 7/6/2023 – extensive modifications and additions to sections 3, 4, 5, and 6.{Approved Rusty McCulloh (Institutional Official), Bruce Gordon (Assistant Vice Chancellor for Regulatory Affairs, Executive Chair)}

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